Have you ever wondered how psoriasis affects other people (their sex lives, for example), what triggers others have experienced, or how ethnicity is related to the disease? You’re in luck, as the National Psoriasis Foundation is now offering a unique voice to the psoriasis community through an initiative called Citizen Pscientist.
The NPF describes a Citizen Pscientist as “a volunteer who partners with the National Psoriasis Foundation to answer real-world questions about psoriasis and psoriatic arthritis.” The online interactive platform is pretty simple: at your own leisure you answer a serious of 42 questions (you don’t have to answer them all at one time). As you complete the survey, you will be able to compare and discuss your data with others in the psoriasis community. You can create your own graphs, start discussions, and discover similarities and differences with the condition.
I had a chance to chat with Lindsey Shankle, the Patient Center Manager of the NPF, who reveals why patient involvement in research is imperative and beneficial to the psoriasis community.
To read the interview in with Lindsey in it’s entirely, click here.